""LONDON — Charlie Gard, who turns 11 months old on Tuesday, was born with an extremely rare genetic disease. He is blind and deaf, and he cannot breathe or move on his own. He suffers from persistent epileptic
seizures .
Now the British infant is at the center of a global debate, drawing in the Vatican and President Trump, over what medical treatment, if any, he is entitled to receive, and who decides — his family, his doctors or the courts.
“These terrible decisions have to be made all the time,” said Jonathan D. Moreno , a professor of ethics at the University of Pennsylvania. “It is very unusual for a case like this to explode on the global stage. They raise difficult moral and ethical questions.”
The London hospital that is treating Charlie has asked permission to remove him from life support. His parents want to take him to the United States, where they believe an experimental treatment has a chance — however remote — of prolonging his life, even though the disease has no cure.
Three courts in Britain agreed with the hospital, as did the European Court of Human Rights , which last week rejected a last-ditch appeal by Charlie’s parents .""
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Sad story. I get that there is no cure and any experimental treatment is more than likely going to fail, but to have government not even take into acct the parents wishes is utterly ridiculous. More than enough money had been raised and a hospital here in the U.S. has already agreed to take him.
Bad move U.K. and EU.

""British baby Charlie Gard, who was at the center of a legal battle that captured the world's attention, died Friday, one week before his first birthday, according to a family spokesperson.*

Charlie was born on August 4, 2016, seemingly healthy. But two months into his short life his parents noticed his health was declining. They took him to London's Great Ormond Street Hospital for Children in October where he remained at least until Thursday.*

He was diagnosed with mitochondrial DNA depletion syndrome, a rare inherited condition that causes muscle weakness and loss of motor skills.*
.....*

The end*
On Monday, Charlie's parents gave up their fight to take Charlie to the US after new brain and muscle scans revealed their son had deteriorated and was therefore less likely to benefit from the experimental treatment, while his doctors and parents battled in court. Too much time had passed.*
.....*

"Mummy and Daddy love you so much Charlie, we always have and we always will and we are so sorry that we couldn't save you. We had the chance but we weren't allowed to give you that chance. Sweet dreams baby. Sleep tight our beautiful little boy," Charlie's parents said in a statement after they gave up their fight. They called Charlie their hero.*""
Link

Bless his little heart